Tymeless Hearts, Inc. is a 501c3 (donations are tax deductible) non profit organization that was founded when Beth Brockwell lost her son, Ethan Brockwell, to hypoplastic left heart syndrome (basically half of a heart).
After realizing how expensive and difficult it is having a child with a heart defect, she wanted to help families going through similar situations. She founded Tymeless Hearts to help families financially and emotionally.
What Tymeless Hearts does:
- support groups online and locally
- Tymeless Hearts has a phone number that heart families may text or call 24 hours a day to talk to someone.
- financial assistance with anything that families may need including lodging, as hotel stays are expensive, gas to get back and forth to doctors appointments, medical bills, other bills that families may fall behind on due to being at the hospital with their sick child.
- Congenital heart defects are the most common birth defect affecting over 100 babies born a day.
- Congenital heart defects are the most common cause of birth defect related deaths.
- This year over 35,000 babies will be born with a congenital heart defect and 3,500 of them will not live to see their first birthday.
- 91,000 life years are lost each year in this country due to congenital heart defects.
- The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion a year.
- Congenital heart defects occur frequently and are often life threatening, yet research into them is grossly under funded.
- Of every dollar the government spends on medical funding only a fraction of a penny is directed toward congenital heart defect research.
- In the last decade death rates for congenital heart defects have declined by almost 30% due to advances made through research.
- More than 50% of all children born with a congenital heart defect will require at least one invasive surgery in their lifetime.
- There are 35 different types of congenital heart defects.
- In the U.S., twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.
Even with all of this, little is known about what causes congenital heart defects and there is not yet a cure for any of them.